In chapter four of her book Genetic Dilemmas, Dena Davis states that it is unethical for parents to subject their children to genetic testing for markers of early-onset genetic diseases adulthood because it places an unfair limit on the child's right to an open future. It removes the child's ability to choose whether to be tested as an adult and has the potential to negatively alter the overall trajectory of their life. Although the current consensus among medical professionals is that such testing should be banned (Davis, _____), many concerned parents correctly point out that discouraging such testing creates a conflict of interest between the “benefit model of patient care and parental rights to their children." own autonomy” (Davis, 75). The availability of commercial genetic testing kits online and by mail order further exacerbates this dilemma by allowing these dissenting parents to obtain test results for their children. Davis ultimately makes a compelling argument that “parental requests for genetic information about their children, when it has no immediate relevance to medical intervention or disease prevention, should generally be rejected” (Davis, 87). This document seeks to demonstrate that, in the case of testing for incurable and late-onset genetic diseases, the protection of the rights and interests of the child should take precedence over parental autonomy, and that there is a marked need for stricter regulation of commercial genetic testing in order to protect these rights. Davis bases his argument against testing children for incurable, late-onset genetic diseases (hereinafter referred to as "testing") on the fact that testing is a violation of the child's right to an open future. Davis believes that while parents… halfway through the document… the recommendation is that the information be kept in a separate area of the patient's medical record, secret from both the parents and the patient until problems arise reproductive or disease onset. They emerge. Perhaps the blind prophet Tiresias said it best in Sophocles' tragedy, Oedipus the King, when Oedipus, guilty but unaware, demanded to know who killed King Laius: "It is only sorrow to be wise when wisdom is of no avail." In the absence of helpful medical interventions, it is best not to perform infant or prenatal genetic screening for late-onset diseases. We are obligated to protect their privacy rights, to choose whether to get tested, and to open futures. When dealing with such emotionally charged medical information, we must protect children's freedom to choose what information to share with their parents and, more importantly, what information to know about themselves..
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